Life with COVID-19 from a Caregivers’ Perspective

We are finally confident that people will understand what we mean when we say life is unpredictable and sometimes feels like it is spiralling out of control. It took a pandemic to have others experience what our lives are like routinely.

The Fetal Alcohol Spectrum Disorder (FASD) Patient Journey Project

By engaging persons with lived experience, we were able to identify and inform service enhancement opportunities in FASD awareness, FASD assessment and diagnosis, FASD care planning and transitions, community-based FASD services and supports, addiction and mental health services, housing support services, education services, and correctional services.

#FeatureFriday – FASD in Canadian news

People with fetal alcohol spectrum disorder (FASD) can have difficult and stigmatizing experiences throughout their lives, as can women who drink alcohol while pregnant. For people who have never knowingly met someone with FASD, the news media could play a key role in shaping their understanding of FASD, alcohol, and pregnancy.

Feature Friday: Mary Ann Bunkowsky

Mary Ann is a mother of two boys. Her oldest is 14 years old and has an FASD diagnosis. Her younger son is 11. He has been diagnosed with a number of neurodevelopmental difficulties, including Autism, but she has been unable to get an FASD diagnosis for him because they have no proof of prenatal […]

#FeatureFriday – Provincial FASD Awareness Surveys

This is how our study came to be. We realized there are a number of different tools and questions surveys use to try and measure the same thing: FASD awareness. We wanted to evaluate how effective these tools were in getting an accurate measurement of this concept.