I often wonder if my child’s FASD was consistently recognized from a disability lens, while framed within a strengths-based approach for interventions and support, would life be just a slight bit easier to manage?
Caregiving has meant making my kids live on their own, knowing that they may fail, but also knowing I needed to keep others safe. Sleeping when I did not know where my child was, praying continually that they would live through the night.
Researchers from across Canada are looking to study how the pandemic has changed the lives of neurodiverse individuals and their families. They are asking for families of children, youth, and adults with FASD to complete a short online survey about their experiences during COVID-19.
We are finally confident that people will understand what we mean when we say life is unpredictable and sometimes feels like it is spiralling out of control. It took a pandemic to have others experience what our lives are like routinely.
It is well documented that caregivers of children with disabilities experience increased levels of stress. But caregivers of children with FASD have been shown to experience higher levels of stress than most people. In a 2009 study, 92% of primary caregivers of individuals with FASD had clinically elevated stress levels. These number show that finding effective ways for caregivers to manage stress is especially important for this population.
A member of the CanFASD Family Advisory Committee recently had the opportunity to participate in a research program that gave caregivers of individuals with FASD the skills to better manage the challenges and stresses of their daily lives using Acceptance and Commitment Therapy (ACT).
In the wake of the COVID-19 pandemic, frontline health care providers are working day and night to protect the health and safety of individuals all across Canada. We honor and respect their sacrifice and commitment to Canadians in this challenging time. This blog post provides a few tips to help frontline health care workers manage the specialized needs of individuals with FASD during COVID-19.
Mary Ann is a mother of two boys. Her oldest is 14 years old and has an FASD diagnosis. Her younger son is 11. He has been diagnosed with a number of neurodevelopmental difficulties, including Autism, but she has been unable to get an FASD diagnosis for him because they have no proof of prenatal […]
Challenges with sensory regulation, attention, memory, and emotional regulation make it difficult for children with FASD to understand and implement preventive health practices. The social distancing measures that have been put in place can result in feelings of depression, stress, confusion, and anxiety. This blog outlines some tips for caregivers to help you implement preventive health practices in your home.
Federal, provincial, and territorial governments in Canada are implementing strict measures to slow the spread of COVID-19. Some recent measures have included travel restrictions, school closures, and event cancellations. Governments are urging Canadians to practice social distancing and stay home whenever possible. However, these preventative measures can be overwhelming, stressful, and anxiety-inducing for individuals with FASD and their families.