When asked to write this blog on what FASD means to me, I struggled. FASD is a complicated disability with many challenging aspects. I finally decided that, in my experience, FASD to this point has meant missed opportunities.
Caregiving has meant making my kids live on their own, knowing that they may fail, but also knowing I needed to keep others safe. Sleeping when I did not know where my child was, praying continually that they would live through the night.
We are finally confident that people will understand what we mean when we say life is unpredictable and sometimes feels like it is spiralling out of control. It took a pandemic to have others experience what our lives are like routinely.
Register now for our newest webinar presentation on Friday July 10, 2020 at 1:00pm EST. Dr. Dorothy Badry, CanFASD’s Child Welfare Research Lead, will be discussing loss, grief, and resilience in relation to FASD along with members from the CanFASD Family Advisory Committee and the FASD community.
A member of the CanFASD Family Advisory Committee recently had the opportunity to participate in a research program that gave caregivers of individuals with FASD the skills to better manage the challenges and stresses of their daily lives using Acceptance and Commitment Therapy (ACT).
Mary Ann is a mother of two boys. Her oldest is 14 years old and has an FASD diagnosis. Her younger son is 11. He has been diagnosed with a number of neurodevelopmental difficulties, including Autism, but she has been unable to get an FASD diagnosis for him because they have no proof of prenatal […]
Are you a parent with a loved one with Fetal Alcohol Spectrum Disorder (FASD) who would like to make a difference in your child’s life and the lives of others that have been prenatally exposed to alcohol? Do you like learning and contributing to discussions that lead to change and new discoveries? Do you presently reside in Nunavut?